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ICC-Caucus Public Policy

Thu, Dec 8, 2016 House Passes FY17 Continuing Resolution (CR)
To OVAC Members:
     The House has passed the FY17 Continuing Resolution (CR) which funds the federal government through April 28, 2017 by a vote of 326-96.
     The bill maintains FY16 funding levels for most federal agencies, with a nominal (0.2 percent) across-the-board cut to comply with statutory budget caps. Most notably for OVAC, the CR includes the FY17 funding from the 21st Century Cures Act. The CR now moves to the Senate where it will be voted on as early as tomorrow.

The ICC actively encourages policy change that benefits the minority and underserved cancer community. In 1999, the ICC Caucus was established as an independent organization, of which the ICC is the sole member.

We support the following public policies:

◆ Fully implementing and funding the recommendation of the Trans-DHHS Cancer Health Disparities Progress Review Group’s report, “Making Cancer Health Disparities History.”

◆ Securing funding for the Patient Navigator, Outreach and Chronic Disease Prevention Act.

◆ Enhancing the collection of data that will better describe racial, ethnic and socioeconomic diversity in cancer care in the U.S.

◆ Increasing federal funding for government programs that provide greater access to cancer screening programs.

◆ Acknowledging and then quickly moving toward full redress and monitoring of institutionalized racism as a major factor in the excess burden of cancer borne by our nation’s minority and medically underserved communities.

◆ Making tobacco control a priority concern, backed by new federal and state initiatives that are specifically targeted to minorities and the medically underserved.

◆ Eliminating the barriers to more effective pain management and palliative care for the medically underserved.

◆ Increasing the level of knowledge about cancer survivorship among the medically underserved.

◆ Restoring Medicare reimbursement for cancer treatment and cancer care in all settings.

◆ Immediately implementing and increasing the funding for the Medicare demonstration project providing access to oral chemotherapy drugs.

◆ Enacting the Patients’ Bill of Rights to provide strong comprehensive protection to all cancer patients in managed care plans.

◆ Achieving universal health insurance and establishing a schedule to reach this goal by 2010.

Read the latest message to CONGRESS from OVAC that we support regarding FY 2017 Appropriations.

One Voice Against Cancer (OVAC), a broad coalition of cancer-related
organizations representing millions of Americans, supports the goals of the Cancer Moonshot initiative and calls on the White House and Congress to follow through on their vision to make funding for cancer research, prevention and survivorship programs a top priority in fiscal year (FY) 2017.  Click here for the full letter.

Op-ed: "Medicare cuts would scorch patientsWritten by Armin for many reasons and for the many family, friends and colleagues who have, are, and will face the need for access to the best advice and best drugs possible.  

Updated by:  PNassi 01/16/2017

The ICC-Caucus is a part of OVAC, "One Voice Against Cancer"

Read about President Obama's Moonshot!

Click here for a fact sheet the White House released that details immediate plans for the Moonshot. There are a number of noteworthy items in this document, including highlighted research priorities (PMI, preventive and therapeutic vaccines, childhood cancer, etc.) as well as a proposal for new funding in FY17. The fact sheet includes a proposal for $755 million in new mandatory funding for the NIH and FDA in FY17.

New, Wed. Jan. 11th, 2016 OVAC

A letter to the Hill regarding Laboratory Developed Tests (LDTs) was signed on by the Caucus.  As you know, an update to the oversight framework for LDTs is long overdue.  Unfortunately, 2016 came to a close without any final action in this area either from the Administration or in Congress.  For this reason, we believe that Congress needs to hear from groups that action is needed to ensure patient safety and the critical role of FDA in the oversight of LDTs.  Click here for the Letter

New, Wed. Jan. 11th, 2016 OVAC

DRAFT OVAC Letter to NIH Director Re: 21st Century Cures Moonshot Funding...The Caucus is in.

To One Voice Against Cancer Members:
     As discussed at the OVAC meeting this past Monday, attached is a draft letter to NIH director Francis Collins thanking him for his leadership as NIH director and for his work on 21st Century Cures. The letter also asks Dr. Collins to ensure the efficient transfer of the moonshot funding in 21st Century Cures to NCI.
     As this letter is consistent with past OVAC letters, it is being circulated as an opt-out letter. Please review the letter and let me know if you have any suggested edits. I apologize for the short turnaround, but the goal is to send the letter to Dr. Collins by next Thursday, before there is any change in NIH leadership. The deadline for groups to opt-out is 5 p.m. ET next Wednesday, January 18th.
     Please let me know if you have any suggested edits or questions.

David Pugach | Vice President, Federal Relations
American Cancer Society Cancer Action Network, Inc.
555 11th Street NW Suite 300
Washington, DC 20004
Phone: 202.585.3219

We signed AADA’s letter

Dear Cancer Prevention Advocates,

      We are writing today to ask that you join us in telling Congress to eliminate dangerous report language accompanying the House Appropriations Committee passed FY 17 LHHS bill, H.R.5926. The House Committee report language called for the CDC’s Center for Environmental Health to study the efficacy of vitamin D supplements versus “non-burning sunshine” and the issue of sunburns as the trigger for melanoma as opposed to “non-burning sunshine.”  We ask that you please sign onto the attached letter to the Senate and House Appropriations Committee and LHHS Subcommittee chairs and ranking members opposing inclusion of this language in any year-end appropriations package.
     A federally-supported study as described in the report would represent a deep and long-lasting setback in ongoing public and private efforts to prevent skin cancer.  “Non-burning sunshine” is not a scientifically-recognized term. Studies have shown that, over time, UV exposure can, even without burning, lead to skin cancer. This directly refutes the request in the report language that calls for a study of “the issue of sunburns as the trigger for melanoma as opposed to non-burning sunshine.”

     Congress should not mandate a study that legitimizes a non-scientific, fictitious term. Rather, Congress should make cancer prevention and public health awareness priorities

If you have any questions, please contact Blake McDonald at bmcdonald@aad.org or 202-712-2608.

GET INVOLVED and contact us:

The Intercultural Cancer Council Caucus

Jennie R. Cook

Past Chairman, National Board of Directors
American Cancer Society

E-mail: reginacook19@gmail.com

COL (Ret) James E. Williams, Jr., USA
Vice President
Chairman, Pennsylvania Prostate Cancer Coalition (PPCC)
Immediate Past Chair, Intercultural Cancer Council (ICC)
Member of Board, Alliance for Prostate Cancer Prevention (APCaP)

E-mail: jimpc2@comcast.neT

Intercultural Cancer Council Caucus

The Caucus (ICCC) is the 501(c)(4) of the ICC (Intercultural Cancer Council)----Mostly as a member of OVAC (One Voice Against Cancer) we lobby for increases on a yearly basis for NIH, NCI, and CDC.  Our goal is to ensure that these provide funding that further our efforts to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.  We have been very successful in our increases and meet by phone once a month to get these increases-----In December of 2015 we saw the passing of One Degree Legislation and it passed the largest increase for cancer research in over ten years.  This new funding will play a pivotal role in our ability to discover new cures and find new ways to prevent and cure cancer and will continue to increase in years to come.

Jennie Cook
President, Intercultural Cancer Council Caucus


The Report IS OUT. Stay up-to-date on the Moonshot here...​

Wed, Dec 7, 2016 21st Century Cures Passes the Senate

To One Voice Against Cancer Members:
     The Senate has passed the 21st Century Cures Act by a vote of 94-5!

Of specific relevance to OVAC, the bill includes $4.8 billion in new funding for the National Institute of Health, including $1.8 billion for the National Cancer Moonshot Initiative.

     It is also important to note that Congressional appropriators released a new Continuing Resolution (CR) last night which includes the $352 million in FY17 Cures funding for the NIH in the CR being voted on later this week. This will allow NIH and NCI to begin spending the Cures money immediately even while the agency budget remains otherwise flat-funded through at least the end of April as a result of the CR.

     Thank you to everyone who has worked on this bill over the past two years and who has helped build support for it. It is important that OVAC members thank House and Senate Leadership as well as the bill’s sponsors for their work on the bill and appropriations chairs and ranking members for including Cures and moonshot funding in the CR.
     21st Century Cures now goes to the president to be signed into law which he is expected to do quickly.Type your paragraph here.